Support Groups and Organizations for Mesothelioma Patients and Families

Dealing with mesothelioma can be an incredibly challenging and isolating experience. However, mesothelioma patients and their families don’t have to face it alone. There are numerous support groups and organizations dedicated to providing guidance, resources, and a sense of community. Here’s a concise guide to some of the valuable support options available:

1. Mesothelioma Support Groups: Join online or in-person support groups where patients and families can share experiences, offer advice, and provide emotional support.
2. National Comprehensive Cancer Network (NCCN): Access NCCN’s resources for mesothelioma patients, including treatment guidelines and expert insights.
3. The Mesothelioma Applied Research Foundation (MARF): This foundation offers information, support, and research funding for mesothelioma patients and their families.
4. American Cancer Society (ACS): ACS provides resources, educational materials, and a 24/7 helpline for cancer patients, including those with mesothelioma.
5. Asbestos Disease Awareness Organization (ADAO): ADAO raises awareness about asbestos-related diseases and offers support to patients and families.
6. CancerCare: CancerCare provides counseling, support groups, and financial assistance for cancer patients and their loved ones.
7. Mesothelioma Research Foundation of America (MRFA): MRFA funds mesothelioma research and offers patient support programs.
8. Patient Advocate Foundation (PAF): PAF provides personalized support and resources for patients facing chronic and life-threatening illnesses.
9. Online Forums and Communities: Engage in mesothelioma-specific forums and social media groups to connect with others facing similar challenges.
10. Local Hospitals and Cancer Centers: Many hospitals and cancer centers offer support services and patient navigators to guide you through treatment.

Joining a support group or connecting with organizations dedicated to mesothelioma can be invaluable. It provides emotional support, access to vital information, and a network of individuals who understand the journey you are on.